Resources for families (The following organizations offer help to parents and caregivers of children and/or adults with various chronic conditions.)

Caregivers Action network

1130 Connecticut Ave NW, Suite 300
Washington, DC  20036
Phone:  (202) 454-3970
Contact by email:  info@cargiveraction.org
Visit their website:  www.caregiveraction.org

CaringBridge

1995 Rahn Cliff Court, Suite 200
Eagan, MN 55122
Phone:  (651) 452-7940
Contact by email:  cegeberg@caringbridge.org
Visit their website: www.caringbridge.org

Edumed: The Caregiver’s Handbook

Visit their website:  https://www.edumed.org/resources/caregivers-online-handbook/

Family Caregiver Alliance

690 Market Street, Suite 600
San Francisco, CA 94104
Phone:  (888) 835-5669 (Toll-free)
Contact by email:  info@caregiver.org
Visit their website:  www.caregiver.org

Pulmonary Hypertension Association

801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Phone:  (301) 565-3004
Fax: (301) 565-3994
Visit their website: www.phassociation.org

TransPlant Recipients International Organization (TRIO)

phone: 800-TRIO-386
e-mail: info@trioweb.org
website: https://www.trioweb.org/  

TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Through the TRIO Headquarters and a network of chapters, TRIO serves its members in the areas of: Awareness, Support, Education, and Advocacy.

Transplant Café

Transplant Cafe is an online community and social network that facilitates support, connections, and a virtual global social resource to all members of the organ, tissue, cellular and limb transplant community. Transplant recipients or individuals waiting for a transplant, professionals who work in the field of transplantation (medical, business, or nonprofit), caretakers, or living donors and donor families are welcome at TC.

Website: https://helphopelive.org/transplantcafe

Lung Transplant Foundation

The Lung Transplant Foundation (LTF) was founded as a non-profit organization by a group of lung transplant recipients form Durham and Chapel Hill, NC. Since 2009, it has raised funds and been an advocate for lung transplant research. They also provide education and emotional support for transplant recipients and their caregivers through their Mentorship Program.

Website: https://lungtransplantfoundation.org

AARP: Home Alone Alliance

The Home Alone Alliance is a partnership of public, private, and nonprofit sector organizations coming together to create guidance for healthcare professionals who engage with family caregivers and tools for family caregivers providing complex care.

Website: https://www.aarp.org/ppi/initiatives/home-alone-alliance

National Council ON AGING

The National Council on Aging maintains a website that provides information on issues related to aging for adults, caregivers, professionals and advocates.

Website: http://ncoa.org

What to Expect When Calling a Helpline

When you’re feeling overwhelmed and isolated, hotline counseling offers a quick and convenient way to find trained support. Learn more about how helplines work as well as their benefits and limitations.

website: https://www.helpguide.org/articles/therapy-medication/calling-a-helpline.htm